Unfortunate for the new born angel


Did you ever know what is Osteogenesis Imperfecta? It is also known as “brittle bone disease” which is a genetic bone disorder characterized by fragile bones that break easily. In the majority of cases, the gene is either inherited from a parent who has Osteogenesis Imperfecta or results from a spontaneous new mutation occurring at the time of conception. Osteogenesis Imperfecta occurs in approximately 1 in 20,000 individuals.

There are different types of Osteogenesis Imperfecta with symptoms that range from mild to severe. Each person with the condition may have a different combination of symptoms. Some people have a severe form of the disorder in which their bones break easily. The common symptoms of Osteogenesis Imperfecta include shot stature, triangular-shaped face, breathing problems, hearing loss, brittle teeth and bone deformities.

In Handicapped and Mentally Disabled Children Association Johor, there are few children who have Osteogenesis Imperfecta which they need to be take care more carefully. They stay in the baby cot for all the time to prevent the bones break and their activity area are in there too. They do not have the freedom in a big space while others do. 😢





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